JuLee's CAT scan is back and it is BAD news....
Posted on Tuesday, July 1, 2008 at 03:21 - Post Comment
I really need everyone's prayers....JuLee's CT scan came back and not only are the sutures closing (Metopic synostosis) but she also has Trigonocephaly....I don't know what all this means yet but they are referring us to Riley for eval by a nuerologist and surgery consult.
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Posted by BeckyTom on Tuesday, July 1, 2008 at 03:33 - Link
I will be praying , please keep us updated. Becky
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Posted by Isabella on Tuesday, July 1, 2008 at 05:59 - Link
I am praying for your family. The Lord is with You. God Bless. I
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Posted by Kitty on Tuesday, July 1, 2008 at 10:04 - Link
OH sweetie, Im so sorry to hear this. I will keep you and your precious baby in my prayers......Kitty
Praying for you...
Posted by Melissa on Thursday, July 3, 2008 at 10:00 - Link
Cathy, I just saw that you posted at my blog and wanted to let you know we're praying for you. My 9 month old son had corrective surgery for trigonacephaly and metopic craniosynostosis in May 2008. He is doing great! Please feel free to email me any time (melreads@gmail.com). Your road ahead won't be easy but by God's grace, you will get through it.
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Our Family
We are a family of five. My husband has MS and Mueiner's. My oldest daughter is blessed with Asperger's Syndrome which is a high functioning form of Autism and my baby was born with multiple heart problems (2 open heart surgeries, at least 2 to go) and dyslexia. Our 4th child was born in January although she was not due until April. Although we have many medical problems, we love life and wouldn't change a thing. The LORD has blessed us in many ways.
 Make your own Blinkie
~Ron,
my husband
~Cathy
~Bug, 10
~Butterfly, 9
~Cowie, 7
~Baby JuLee
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Recent Entries
• We have a surgery date and new picture of JuLee.
• Taking a much needed Break.....
• Back from Riley..Good and Bad News
• Happy Baby
• Here's what I know about JuLee's Trigonocephaly
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