Jacob is finally resting. He is starting to get a bit of a fever -- normally I might not worry about a little fever, but 101.2 after the ordeal of the burns, the skin scrubbing....they are going to take some blood and do a couple of cultures on him.
Hmmm....I hate hospitals. And with that staph going around of late.....ugh....I don't like hospitals.
Tomorrow we are going to have to make some changes here with the routine. They want him to increase his protein and fat intake. Not a problem. He's hungry. The only problem is they say they are coming to take him to the StarLight room for the deburring at 10 am and don't bother to come up for him until nearly 1 pm! He can't eat of drink (just a clear vitamin drink) after midnight because of the sleepy-time cocktail he gets for the scrub-down. That's fine. But then to not allow him to eat ALL DAY like that? That is ridiculous! Then he ends up with a feeding tube (done last night while I was gone...another UGH) because they want a specific amount of calories taken in daily to promote good tissue growth and he doesn't have anything close because he can't eat until nearly 3pm!
And, his chart calls for morphine in the IV as often as needed, up to every 2 hours. Well, try getting that done Take now for example....it's 11 pm. He was due half hour ago. Still not a sign of the nurse with his meds. I don't like medicating children....but we aren't talking a normal circumstance here. We're talking a 6 year old boy, a baby for crying out loud, and they keep telling me to let them know when he starts to get uncomfortable.
Uncomfortable? What exactly would constitute uncomfortable....maybe having 2nd degree burns on your body? Maybe being so hungry your stomach growls but you can't eat? Maybe having to sleep sitting in a scrunched up, upright position so the wires and lines can do their thing unabated?
Uncomfortable. Yeah, right. His entire world is lacking in comfort right now! But, hey, let's add to it and make the poor child sit here in his misery and pain until he can't stand it and is screaming not to touch him.
Yes, tomorrow we are going to have to see about a few changes in his treatment. I have been polite and nice about as far as I think I can be right now. I'm not going to watch my child taking on discomfort and pain that is totally without reason. He has more than enough on his plate already. I have enough on my plate already. I'm thinking Shriner's looks like a much better choice for care....maybe I should call them this week.....
Yes Shriner's has a most wonderful burn hospital and I do think all treatment is free. Well, it used to be many yrs. ago. I sent you a PM about Shriner's. I hope you had time to read it.
maa's mom
Deanna,
This whole situation just brings me to tears. I will be praying that God gives you and Dewey strength as you are definitely going to need it, just with dealing with outside people.
Trixi
I am sorry to hear that you are having trouble there at the hospital. Maybe if you ask to speak to the nurse manager on the floor and let her know your problems. They are usually so good about taking care of the children and the parents.
I live here in the area and we have had to be at the hospital before for quite a serious illness. Everything went so well and they were so good to us. I know it really depends on who is working. I grew up doing volunteer work there also during my teens yrs. I just loved it there.
I will be praying also that you get a loving nurse today and that her work load is kight so that she can can for your son the way that he needs.
I am here if you need anything, anything at all. I am only about a 25 minute drive from you and can be there in no time to help with anything. Please let me know if I can do do anything and I plan on trying to come that way to check on Jacob and you as soon as I can. ( please post if you do change hospitals.)
Again, I am so sorry that the staff is not treating you guys the way that Jacob needs to be cared for.
Much prayers coming your way,
Pat (emailing you my cell phone #, for if you need anything.)
Deanna,
Your family is in my prayers. We're about 30 minutes south of the city. If there's anything my family can do for yours please let me know. Leigh-Ann
P.S. I'll send you a pm with my phone number if you need it.
Our little boy, that we adopted, had third degree burns and was in the local childrens hospital for several months. We didn't get to be part of his life and help him through his recovery until after his first surgery. He is such a blessing to us and the Lord continues to heal his heart and body daily! I will be praying for you and your family!! With much love, Mrs. Joseph Wood
My heart continues to go out to jacob...... as well as my prayers..... yes hospitals are not fun.... and sometimes, often times the care is not so great....... I have had my share of hospital expierences....... I will pray that the Lord may grant you the wisdom to see clearly what you should do for jacob.
Thanks for taking time to udpate us all. We are praying!
I haven't been online much this week, been dealing with a sick kiddo; and was just shocked to read this. I am so sorry this happened. All of you are in our prayers. (((HUGS)))
No indulgences of self will can be trivial, no denial unprofitable; Heaven or Hell depends on this alone. A parent who studies to subdue it in his child works together with God in the renewing and saving of their soul. The parent who indulges it does the devil's work, makes religion impractical, salvation unattainable, and does all that in him lies to damn his child, soul and body, forever.
Susanna Wesley
At The School Desks
We are a Christian family desiring to raise our children with the primary focus of Training their Hearts!
I have no greater joy, than to hear my children walk in truth... III John 1:4
Train up the child in the way he should go: and when he is old, he will not depart from it... Proverbs 22:6
Oh, that their hearts would be inclined to fear me and keep all my commands always, so that it might go well with them and their children forever!... Deuteronomy 5:29
Our mission in life is not to go to some far-off foreign land, but to work at home and in our churches and home communities. Our goal should not be to leave behind riches and possessions, farms and homes for our children, but a priceless heritage they will cherish enough to work fervently to pass along to their children. It has been done for generations and with God's help it can still be done. In teaching our children, we are striving toward a deep understanding of who they are In Christ. I am . . . a child of God, a gift to my parents and my country. I'm a person of great value because God made me. I can . . . do all things through Christ who strengthens me. God has made me able to do everything required of me. I ought . . . to do my duty to obey God, to submit to my parents and everyone in authority over me, to be of service to others, and to keep myself healthy with proper food and rest so my body is ready to serve. I will . . . resolve to keep a watch over my thoughts and choose what's right even if it's not what I want.
Take now for example....it's 11 pm. He was due half hour ago. Still not a sign of the nurse with his meds. I don't like medicating children....but we aren't talking a normal circumstance here. We're talking a 6 year old boy, a baby for crying out loud, and they keep telling me to let them know when he starts to get uncomfortable. 
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